other information
MS Research Policy:
#1 Authority and
complementarity:
Any medical or health advice provided and hosted on "MS
Research" will only be given by medically and clinically trained and
qualified professionals unless a clear statement is made that a piece of advice
offered is from a non-medically qualified individual or organisation. The
information provided on this site is designed to support, not replace, the
relationship that exists between a patient/site visitor and his/her existing
physician.
#2 Aim and audience:
The aim of this MS Research website are education and
information for those who have MS, their families and for professionals who
work in the field of MS research and treatment.
The Bristol MS Research and Resources Unit offers expertise and
insight to NHS staff (e.g. nurses, physiotherapists etc.) and those in other
organisations to foster a better understanding of MS and its impact. Support is
not restricted to the South-West of England but is available to the whole UK.
The support includes a range of MS internet sites and useful organisations on
this website for those who have MS (PwMS), their families and for professionals
who work in the field of MS research, care and treatment.
#3 Confidentiality and
privacy:
We care about your privacy. When you complete a form, we will only use this
information to improve our site or will use it to contact you regarding MS
Research matters of research, fundraising or to send you information and will
not pass on your information to any other parties.
Further to the information you provide on this form, after you have submitted,
we can collect information about your browser, your remote computer name and
your user name. We will only use this information to improve our site and will
not store it with information we could use to identify you.
Confidentiality of data relating to individual patients and visitors to the
site of Multiple Sclerosis Research Training and Education ("MS Research"),
including their identity, is respected by this Web site. The Web site owners
undertake to honour or exceed the legal requirements of medical/health
information privacy that apply in the UK. We would like people with MS
interested to participate in experiments to contact us by surface mail or
telephone. We do not pass on any addresses or personal details to any other
organisations. All experiments are conducted within the rules of the ethics
committee, assuring that all returned questionnaires remain anonymous.
#4 Transparency of
sponsorship:
Support for this Web site will be clearly identified, including the identities
of commercial and non-commercial organisations that have contributed funding,
services or material for the site.
#5 Attribution:
Where appropriate, information contained on this site will be supported by
clear references to source data and, where possible, have specific HTML links
to that data. The date when a clinical page was last modified will be clearly
displayed (e.g. at the bottom of the page).
#6 Justifiability:
Any claims relating to the benefits/performance of a specific treatment,
commercial product or service will be supported by appropriate, balanced
evidence in the manner outlined above in Principle 5.
#7 Honesty in advertising and
editorial policy:
Multiple Sclerosis Research Training and Education Ltd. ("MS
Research") is a Multiple Sclerosis charity based in Bristol but with a
national fundraising brief. (Charity Number:
1043280)- Advertising is not a source of funding for MS
Research. However, some generous benefactors might be acknowledged and
identified as such on our website to facilitate differentiation between it and
the original material created by the MS Research Charity.
#8 External links
disclaimer:
We do not provide links to private companies, unless that private company
provides a national and recognised service. In some cases private companies may
not obtain a link dependant on the relevancy and other factors such as the
"MS Research"'s desire to present unbiased and balanced
signposting.
We may provide links to a site if it is judged to be particularly relevant to
the aims and priorities of "MS Research". We provide links to recognised
marketing resources, both private and commercial, if these have been judged to
be appropriate. In each case sites are linked to only if they have passed our
quality checks to ensure the good standard of these sites.
Websites who wish to obtain a link from the MS Research
website must contact the web team to be considered using the form provided. A
website will be assessed on accessibility, quality of information, nature of
content and the way in which it handles any personal data. If a website is
found to be suitable to the organisation as a whole and passes these quality
checks a link may be supplied. "MS Research" retains the right to reject or
remove a link at any time without notice.
"MS Research" takes no responsibility for the content of
external websites. The existence of a link to an external website or a link to
"MS Research"'s website from an external website does not
imply that "MS Research" endorses the activities or views of
that organisation.
While we have every confidence in the web site material linked to this site, in
no event shall "MS Research" be directly or indirectly
responsible for any damage or loss caused by or in connection with the use of
or reliance on any such content, goods, or services available on or through any
advice or comments made on the web sites of other individuals and
organisations. The information you gather from the world wide web, chat,
newsgroups or e-mail lists should not be relied upon as a substitute for formal
advice from your GP, MS nurse or neurologist. Always speak to your primary
medical advisor or the MS Research and Resources Unit before trying any treatment
you read about on the Internet.
MS Research Team.
